Finding the "Just Right Challenge" by Patty

Over the years, my family has missed out on many typical childhood activities. We have never gone to an amusement park, we often decline birthday party invitations, and we rarely travel. We also often skip church parties, forgo YMCA breakfasts with Santa, and choose not to enroll our kids in many activities.

Sometimes I wonder if we should get out more. I wonder if maybe I am sheltering my kids too much or if I am not making enough effort to get out.

The reason we skip most activities is because of the sensory craziness that comes with them, and I am never sure how Danny and Charlotte will handle it. Sometimes, too, it just doesn’t seem worth all the trouble to prepare the kids and ourselves for the possible ordeal.

And, if I am being perfectly honest, sometimes I can be a bit anti-social. While I enjoy being around other people, I don't particularly care for large groups; the sensory stimulation isn't just hard on my kids, but on me as well.

We aren’t hermits; we do take the kids to social gatherings. It’s just that we are pretty choosy. Still, I have to admit, we refuse many, many invitations.

This past summer, I met a woman, Alicia Hart, an autism advocate who founded an Adventure Club in our town. This was a group for families of kids with autism who regularly met at the park to engage in science experiments, art projects and musical performances. Danny and Charlotte loved it, as did I.

To end the summer on a high note, Alicia gathered almost 100 people—kids with autism and their families—for a bowling party.

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